19.2.4—Genetic medicine considerations

Screening and gene therapy raise questions about consent, privacy, discrimination, access, reproductive decisions and long-term risk.

A defensible judgement separates evidence about safety or benefit from values about who should decide and who receives access.

Offering a predictive test may help planning but also create anxiety or insurance concerns if privacy is weak.

Ethical disagreement is not solved by listing “pros and cons”; specify stakeholders, evidence, uncertainty and decision criteria.